MDA Overview:

At MDA, we believe our biggest asset is our combination of different backgrounds, cultures, and disciplines united to form one high-performing team. By bringing together people from different backgrounds, perspectives, and generations, we ensure that we all have access to the opportunities, relationships, and resources necessary to learn, grow and thrive. What we do starts with our people and the neuromuscular disease community we serve. As America’s largest voluntary health organization covering research, healthcare, and advocacy for people with neuromuscular diseases, MDA is leading the way in improving the quality of life for those living with muscular dystrophy, ALS, spinal muscular atrophy, and dozens of related disorders – many first discovered and diagnosed by MDA supported scientists and clinicians.

Position Overview:

The Vice President of Technology leads the evolution of MDA’s technology and data capabilities to better support its mission, scale its programs, and improve how work gets done across the organization.

MDA operates across a broad set of activities, including fundraising, research funding, care support, community engagement and advocacy. Each of these areas depends on strong systems, reliable data, and effective coordination across teams. This role is responsible for strengthening and connecting these capabilities so that the organization can operate with greater clarity, speed, and impact.

The Vice President serves as a close partner to business leaders, working across fundraising, finance, research, and patient services to understand priorities, improve workflows, and ensure that technology supports real operational needs. The role focuses on enabling teams to work more effectively by improving system usability, increasing data visibility, and reducing reliance on manual processes.

This role also requires a strong technical foundation, including a working understanding of enterprise application architecture, system integrations, and data flows across platforms. The Vice President must be able to engage deeply with systems design decisions, guide architectural tradeoffs, and ensure that technology choices support long-term scalability and maintainability. This role partners with leadership to leverage technology for innovation and strategic impact and stays versed in emerging trends to drive organizational effectiveness and mission delivery. It is a hands-on leadership role that combines strategy, execution, and collaboration.

This position reports to the Chief Operating Officer.

Location:

This is currently a remote position.

Salary:

This position's salary range is $170,000 - $180,000. Final offer amounts and levels are determined by multiple factors, including your experience, and may vary from the amounts listed above.

Responsibilities:

Improve and connect core systems, including CRM, financial platforms, research systems, and operational tools
Translate business processes into scalable, well-integrated technology solutions
Define and execute a technology roadmap focused on reliability, usability, and long-term scalability
Establish and strengthen data capabilities to improve reporting, transparency, and decision-making
Lead delivery of technology initiatives with clear priorities, timelines, and outcomes
Ensure infrastructure and cybersecurity practices support a secure and reliable environment
Ensure Salesforce is effectively configured, governed, and integrated to support fundraising, donor management, and reporting needs
Manage vendor relationships and technology investments with a focus on value and performance
Build and lead a technology team that is responsive, accountable, and aligned with organizational needs
Develop and oversee IT governance practices, including standards, policies, and controls to ensure security, compliance, and effective use of technology resources
Partner with leadership to develop and manage the technology budget, including forecasting, prioritization, and cost optimization strategies
Support organizational compliance with applicable regulatory, legal, and data privacy requirements

Required Qualifications:

Bachelor’s degree in a relevant field
12+ years of experience in technology leadership roles
Proven experience building and leading a high-performing, full-spectrum IT team spanning applications, infrastructure, data, security, and support services
Strong understanding of enterprise application architecture, system integrations, and data models
Experience managing enterprise platforms, including CRM systems such as Salesforce
Experience with IT governance and budgeting
Experience working directly with business leaders on cross-functional initiatives

Preferred Qualifications:

Experience in nonprofit, healthcare, or research environments
Experience with Salesforce in fundraising or donor management contexts
Experience with cloud-based systems and data platforms

MDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.

Benefits

MDA Benefits:

For full-time employees
Medical, Dental and Vision insurance with prescription coverage
Health Savings Account with contribution matching and Flexible Spending Accounts for medical and/or dependent care
Paid sick leave
Employee Assistance Program (EAP)
100% contribution towards basic life insurance, short-term and long-term disability
Optional additional life insurance and dependent life insurance available
403(b) Retirement Savings Plan with company match
Generous paid time off policy, with an increasing accrual rate schedule
Paid holidays
Standard 35-hour work week with flexible hours
Remote, work from home opportunities
Professional Learning and Development opportunities, including Leadership skills

Muscular Dystrophy Association

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